Publications & Links
Here you can find publications from clinics and study results
Stuttgart Hospital
A description of idiopathic progressive subglottic stenosis (IPSS) with pictures and further information.
Endoscopic treatment of benign tracheal stenosis: a single-center study (English)
The study is available in the download area in English (original) and in a (machine-) translated German version.
Stuttgart Hospital
A description of idiopathic progressive subglottic stenosis (IPSS) with pictures and further information.
National Organization for Rare Disorders (NORD)
A comparable publication in English Idiopathic Subglottic Stenosis
National Library of Medicine
A very detailed study from ClinicalTrials: Treatment Alternatives in iSGS (NoAAC PR-02 Study) (NoAAC PR-02)
The self-help tracheal stenosis in the press and on the internet
Idiopathic subglottic stenosis
Published by:
German
11. Juni 2024
Author:
Lunge Zurich Association
We are a member of or listed on
National Contact and Information Centre for the Promotion and Support of Self-Help Groups (NAKOS)
The BLUE ADDRESSES database lists rare diseases or problems for which people affected have reported to NAKOS, but for which no community self-help offer has yet been found in Germany. The keywords marked with (SE) at the end of the word are topics associated with rare diseases.
ProRaris - Alliance of Rare Diseases - Switzerland
ProRaris is the umbrella organization for patient organizations of people with a rare disease. We also support isolated patients who are not represented by any organization. ProRaris is committed to equal access to care for all. ProRaris also ensures that the implementation of the National Concept for Rare Diseases corresponds to the interests of those affected. To achieve this, ProRaris works as a key partner in the implementation of the measures and brings patient expertise to the various projects. ProRaris ensures patient participation as expressly provided for in the National Concept.
Other self-help groups
English-speaking support group for patients
Stichting Subglottische Stenose (Niederlande)
Website voor patiënten met tracheale en (idiopathische) subglottische stenose
Zurich Lung League
Helps. Informs. Works.